Doctors cured her sickle-cell disease. So why is she still in pain?
Gene and cell therapies bring fresh hope to people with genetic disorders, but recovery can be complex and long-term support remains sparse.
Stroke rates increasing in individuals living with sickle cell disease despite treatment guidelines: Study
The incidence of stroke continues to increase for adults and children living with sickle cell disease (SCD), despite the Stroke Prevention Trial in Sickle Cell Anemia (STOP) establishing standards of care like transfusions and tests to measure blood flow in the brain for those deemed high-risk,
Innovations In: Sickle Cell Disease
Illuminating the experience of people living with sickle cell could improve patients’ lives and enhance all of medicine Improving sickle cell care by expanding treatment options, advancing new therapies and amplifying the voices of people with the disease
What To Know about Sickle Cell Disease (SCD)
For people with SCD, hemoglobin S (a mutated protein that transports oxygen) causes red blood cells to become curved (sickle-shaped) and stiff. This
Alarming Rise In Stroke Rates Among Adults And Children With Sickle Cell Disease In US
A new study reveals rising stroke rates among adults and children with sickle cell disease, despite advancements in care. The research shows increased risk as patients age and emphasizes the importance of regular screenings for stroke risk factors like high blood pressure and cholesterol.
New Hope for Treating People with Sickle Cell Disease
Improving sickle cell care by expanding treatment options, advancing new therapies and amplifying the voices of people with the disease
Hospital staff raising awareness for sickle cell disease
Staff at the Tomorrow Fund Clinic in Hasbro Children's Hospital wore matching t-shirts to try and raise awareness for sickle cell disease.
The promising sickle cell disease treatment being studies at St. Jude
Memphis has some of the highest rates of sickle cell among babies in the entire nation. For this Sickle Cell Awareness month, St. Jude Children's Research Hospital is highlighting how they are working to bring a new era of hope for kids with the disease.
What Is Sickle Cell Disease?
A self-described sickle cell disease warrior, Mariah J. Scott, 33, fights through chronic pain of the disease every day, but that has not slowed her down to be a mom, advocate and student. Initially reluctant to share her diagnosis, Scott, of Highland Park ...
The Advocate3h
Sickle cell disease is debilitating — still, patients struggle to receive care in Acadiana
Sickle cell patients say they struggle to receive appropriate care, especially in emergency room settings. Overcoming some of ...
WJHG13h
2nd Annual Walk and Awareness Day for Sickle Cell
BONIFAY, Fla. (WJHG/WECP) - Bringing awareness to sickle cell disease, one walk at a time. Friday, on Newschannel 7 at 4 p.m., Shenika Richardson and Sheryl Johnson, stopped by to spread the word ...
Mississippi Gulf Coast Pan-Hellenic Council raising sickle cell disease awareness with blood drive
The Mississippi Gulf Coast Pan-Hellenic Council hosting an upcoming blood drive to spread awareness of sickle cell disease.
Health Matters: So You Have The Sickle Cell Trait, Here's What You Should Know
Sickle cell trait (SCT) differs vastly from sickle cell disease. SCT is a genetic condition when someone inherits one sickle ...
Scientific American3d
A Global Initiative to Advance Sickle Cell Research Could Benefit Millions
Increased funding and new public health policies for sickle cell research are needed to ease the burden on low-income nations ...
WYSO2d
Sickle cell gene therapies roll out slowly
It’s been almost a year since the Food and Drug Administration approved the first genetic treatments for sickle cell disease.
The New York Times5d
First Day of a ‘New Life’ for a Boy With Sickle Cell
Kendric Cromer undergoing infusion gene therapy for his sickle cell disease at Children’s General Hospital in ...
Medscape4d
No Matched Sibling Donor? Sickle Cell Experts Debate Next-Best Option
"If there is an indication for intervention, for a curative therapy, in the absence of a matched sibling donor, gene therapy ...