What is Duchenne? (for ages 4-7)
What is Duchenne? (for ages 4-7)
May 21, 2020
parentprojectmd.org
Tucson child receives first gene therapy treatment for Duchenne muscular dystrophy.
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Tucson child receives first gene therapy treatment for Duchenne m…
10 months ago
MSNKGUN Tucson, AZ
Duchenne is a rare genetic condition that mostly affects boys. It’s progressive, and raising awareness is so important. Every day counts. We’re still learning what life with Duchenne looks like for Louie and we don’t have all the answers. We hope that by sharing our journey we can help other families get answers sooner than we did. Please share to spread awareness 💛 #duchennemusculardystrophy #duchenne #duchenneawareness #musculardystrophy #timeismuscle #makingmemoriesaccessible | Making Memori
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Duchenne is a rare genetic condition that mostly affects boys…
262 views6 months ago
FacebookMaking Memories Accessible
Duchenne Families: it’s a lot. I know. We can only do what we can do. Don’t forget to breathe out. #duchennemusculardystrophy #duchene #duchenneawareness #dmd #dmd #capacity #jugglinglife #wingingit | Harrison & Duchenne - Raising Awareness of Duchenne Muscular Dystrophy
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Duchenne Families: it’s a lot. I know. We can only do what we can do. D…
684 views5 months ago
FacebookHarrison & Duchenne - Raising Awareness of D…
Kids living with Duchenne carry a level of stress most people never see. Their lives are shaped by appointments, tests, learning challenges, social hurdles, and emotions that can feel far too big for such young shoulders. And that’s only what’s visible. For many other kids, stress has an outlet - running it out, climbing, contact sport, rough play with friends. But for kids with Duchenne, those options often aren’t safe and for some not possible. Muscles tire quickly, recovery is slower, and the
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Kids living with Duchenne carry a level of stress most people never …
10.6K views4 months ago
FacebookHarrison & Duchenne - Raising Awareness of D…
Parenting a child with Duchenne carries a responsibility that goes far beyond the usual roles of motherhood or fatherhood. It means becoming a protector, advocate, decision-maker, and steady presence in the face of uncertainty. Our responsibility is not just to extend life where possible, but to protect quality of life. To ensure our child is cared for with dignity, spoken to with respect, and surrounded by love - always. This is not something you clock in and out of. It’s a sacred responsibilit
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Parenting a child with Duchenne carries a responsibility that goes f…
4.2K views3 months ago
FacebookHarrison & Duchenne - Raising Awareness of D…
Raising a child with Duchenne Muscular Dystrophy means living in a world that never stops shifting beneath your feet. You’ve pressed pause on parts of your own life, rebuilt routines more times than you can count, and learned to navigate medical and support systems most people never even hear about. You’ve weathered transition: new equipment, new specialists, new stages of progression, and somehow you just keep showing up. You learn, you adjust, you make the tough calls with a mix of love, fear,
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Raising a child with Duchenne Muscular Dystrophy means living …
4.6K views5 months ago
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