TSC Talks 3.0 Research, Episode 4-Rare disease Funding
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TSC Talks 3.0 Research, Episode 4-Rare disease Funding
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YouTubeJill Woodworth Talks
What does it mean to have a rare disease? It might mean…. 🦓 It takes longer to get properly diagnosed. 🦓 It’s frustrating to have to explain your disease to friends and loved ones. 🦓 You need to advocate for yourself a little louder. 🦓 You become an expert on your disease, sometimes even knowing more than your own doctors. 🦓 You have to travel to see a specialist. 🦓 Your insurance coverage is complicated. What does having a rare disease mean to you or your loved ones? Show your stripes - a
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What does it mean to have a rare disease? It might mean…. 🦓 It take…
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National Organization for Rare Disorders (NORD) on Instagram: "Hosting an event for #RareDiseaseDay? Your plans, big or small, are an important part of the global movement for #RareDisease awareness and community building. Add your event to the national calendar through the link in bio and help us highlight festivities around the United States: https://rarediseases.org/rare-disease-day/share-an-event/ #ShowYourStripes #RareDiseaseAwareness #RareDiseases"
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National Organization for Rare Disorders (NORD) on Instagram: "…
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